Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Sunday, November 20, 2011

This Christmas...

This Christmas/holiday season I hereby issue a challenge:

Don't buy anything for your loved ones! 

Pretty crazy, I know, but hear me out.  

Today I finally got around to tackling a task I really don't like doing, which is clearing our kitchen table.  It's basically a catchall for junk mail and random doodads that we don't know what to do with just yet.  I avoid it as often as possible, but eventually it has to be done.  Anyhow, as I was clearing out, I stumbled upon a World Vision gift catalogue.  Intrigued, I put it aside while I finished my task at hand.

After finishing, I decided to thumb through the catalogue; what I saw brought me to tears.  Even talking to my fiance about it 10 minutes later caused me to break down in tears, yet again.  Sure, commercials can make me cry, but that's beside the point.  Did you know, that for $30CAD, you can give 10 children the gift of health?  For $35CAD, you can give 3 families the gift of self-reliance.  Forty five dollars gives the gift of literacy, education, independence, the chance for freedom to a classroom full of children.  For only $100CAD, you can give entire communities the gift of life.

So little is needed to give so much to so many people.  How many of us have a wish list of things that we want for our birthdays or Christmas (or whatever gift giving celebration you participate in)?  How many of us are fretting, thinking, "Oh, god!  What am I going to get Mom and Dad this year?" How many of us get nauseated at the idea of having to brave yet another mall excursion to get a $50 toy for your kid, who already has a room full of toys, and who may only play with that toy a half dozen times - if even that much?

Okay yes, not actually getting anything for your kids (the ones who aren't grown, at any rate) may seem a bit harsh, but I do encourage you to think about how much you're willing to spend on everyone, and how much of an impact even a fraction of what you will spend this year will have on people who really do need our help. 

How about this?  Instead of not buying anyone any gifts this holiday season, consider making a donation to World Vision, or whatever organization you wish to donate to in the name of at least one person on your list.  Chances are, they will be moved that someone loved them enough to save a bunch of people in their name. 

PS: I have the pleasure of getting to know a person by the name of Cathy on Facebook.  She has a business page called Cathy's Creations and she knows, perhaps more than most, the joy helping someone can bring.  She puts a fair bit of time (I'm assuming, judging by how many packages she sends out on a weekly basis) into making beautiful bracelets (among many other things).  One line of bracelets she makes are "Cause Jewelery".  Proceeds from the bracelets goes to various (American) health organizations, children's charities (usually for a specific child who has to spend much of their short life fighting cancer or some other life threatening condition), or awareness efforts.  She has touched many, many lives, brought joy and hope to many children and their families, and has inspired a lot of us to get off our duffs and do the same. 

I've been off work for nearly 8 months now, but I'm going back soon.  One of the first things I'm going to do with my first paycheque is buy a coat for the man who sits outside my local grocery store.  I don't know his name, or what brought him to his current situation (though, I can't help but wonder how much he would benefit from more efforts/funding for social housing in our city) but I do know that he is kind to my son, and doesn't have a clean coat to keep him warm and dry.  That's all I need to know. 

I can't help but wonder if I would have been inspired to do this, had it not been for the inspiration we get from all the kind, selfless, wonderful things she does for so many people.  I'm not Christian, Jewish, Muslim, Pagan or Buddhist, but truly believe that Cathy is doing something that transcends humanity. 

Monday, September 12, 2011

Hug your children tonight.

Faith the Warrior Princess, has lost her battle with cancer today.  She was just shy of her ninth birthday, but she decided that she wanted to be ten for her birthday.  They celebrated her birthday a few weeks ago, so she and her family had a chance to all be together.

She's just a baby, but she was so strong and seemed to always have a smile in every photo her family has shared with us on Facebook.  It's not fair.  There aren't any words that can be said that would make it fair. 

Yesterday, Kienan was brought back to his mother's loving arms.  Today, Faith was taken from her mother's loving arms.

Both are reasons you should go hug your children right now, and every other opportunity you get.

Tuesday, August 23, 2011

Faith the "Warrior Princess"

Because I know this little girl is someone that is near and dear to some of my friends' hearts, I am going to dedicate this post to Faith, the Warrior Princess.  What is written below is a summary of the difficult war she has been battling against cancer.  I was going to say it's a brief summary, but there's no such thing as a "brief summary" when talking about one's battle with cancer.  Some of it may be difficult to read, but imagine how difficult it is for this little girl and her family to have to live through it.  

Faith was 7 years old on April 19th when she was diagnosed with Osteogenic Sarcoma in her left deltoid and shoulder. She started Chemo at Doernbecher Children's Hospital, but the chemo didn't work. The tumor grew and we were told her arm would need to be amputated. Two days before that was to occur, Dr. "Chappie" Conrad of Seattle Children's Hospital did a limb salvage surgery and saved her left arm from just above the elbow down through her hand. She has 'medical play-doh' for a left shoulder and a ceramic encased steel rod in her upper arm. She continued her chemo at Doernbecher until the protocol ended January 2011.

On April 15th, 2011, she was diagnosed with metastatic lung cancer, and had lung surgery on both May 3rd and May 23rd, 2011. At the beginning of July, 2011, her cancer again metastacised to her left lung - the upper lobe has a 4cm+ tumor in it that grew in 4 weeks and cannot be removed at this time, as it is wrapped around the pulmonary vessel.

We were flown to Doernbecher on Monday, July 18th, after a weekend in our local hospital, where it was discovered that she had a pleural effusion (liquid between the left lung and chest wall.) At Doernbecher, they began by draining 1/2 liter of fluid from her chest. She also had a mass on her jaw that it took several weeks to figure out - the final answer was Osteogenic Sarcoma in the soft tissue wrapped around her left mandible. She started a new chemo protocol for metastasis that has a published 30% response rate. She was also given 5 high doses of radiation, for palliative care, hoping to reduce her pain and possibly shrink the tumor. They again needed to drain her chest cavity that had built back up, this time taking 1.75 liters of fluid and leaving in a chest tube. After one round of chemo, and both the mass in her jaw and chest growing, we stopped the chemo as it obviously wasn't working. It's still undetermined whether or not the radiation worked. Her jaw and cheek are still extremely swollen at this point - the last radiation was Friday, August 5th.

We were told that at this point, because her cancer has been resistant to everything, the doctors they believe she has anywhere from 4-6 weeks left with us. They did discover a 'mutated gene' in the biopsy from her chest that has not been seen before (or not discovered) in Osteogenic Sarcoma patients. She would be eligible for a clinical trial 2-weeks after discontinuing radiation, if she is ambulatory and not oxygen dependent. This gene is one that is seen in adult lung cancer patients, but has not been tried on pediatric Osteo patients. Time and the good Lord will let us know if this is meant to be. We were told that this would not be a "cure" but if it worked at all, might just prolong the inevitable.

We were flown home today and Faith will be on hospice care until/unless we are led down a different path. We ask that you encourage, support and pray for our sweet Warrior Princess as she continues to battle for her life ♥

Here are some ways you can help:

  • On Faith's Facebook page, Faith's Friends, there is a FundRazr tab.  You can donate by PayPal directly through this page.
  • My friend, owner/founder of Cathy's Creations has created some beautiful pieces of jewellery (a bracelet, a charm and a ring) for Faith's Friends.  Proceeds of the jewellery goes to Faith's family to help with medical costs.  She also has a lot of wonderful jewellery, some of it attached to a specific cause, and puts a lot of love into the pieces she makes.
  • On Cathy's Creation's Facebook page, there will be an auction for a brand new HP Touchpad on August 27th, 2011.  The auction will start at 9am EST and end at 3pm EST; starting bid is $150.  She will post the same photo that day when the auction starts and all you have to do is place your bid under the photo.  ALL proceeds from this auction will go directly to Faith's family.  You get a shiny new toy, and you can know that the money you spent on it went to a good cause.
  • The Dinner Roll is accepting contributions for Faith's family.  When they are in need of a meal, they can call the Dinner Roll, order what they would like from 15 different local restaurants and have it delivered at no additional cost! You can contact The Dinner Roll at: 541-772-7655. The account name is Jolayne Fulmer. I think this is something people forget about all the time.  The families are hit hard when they are faced with a battle against cancer, and something as simple as making a meal can sometimes be way too overwhelming.  
  • There is a Sensational Scentsy fundraiser, that you can be linked to through Facebook.  The woman organizing it is donating 50% of her commission from August 15th, 2011 - September 2nd, 2011 to Faith's family to help with medical costs. 
I know times are tough right now for a lot of people - believe me, I know! - so it may be really hard, if not impossible, to help out financially.  Spreading the word however, is free.  Forward this post to everyone you know who can help financially or who knows someone who can help. 


Faith is a mover of mountains,
And there's nothing that God cannot do,
So start out today with Faith in your heart 
And climb till your dream comes true!